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Major Projects

The Arbor Research Collaborative for Health conducts major studies in epidemiology and public health. Many of these studies focus on chronic disease and end-stage organ failure. They require expertise in biostatistical analysis, clinical practice, management and integration of large data sets, economics, and public policy.

  • Dialysis Outcomes and Practice Patterns Study (DOPPS):The DOPPS is a prospective cohort study of hemodialysis practices based on the collection of observational longitudinal data for a random sample of patients from a representative and random sample of units in 12 countries (Australia, Belgium, Canada, France, Germany, Japan, Italy, New Zealand, Spain, Sweden, the United Kingdom, and the United States). Data collection for the study has been on-going since 1996 and has yielded detailed data on more than 38,000 patients in over 900 dialysis facilties. DOPPS investigations focus on determining which dialysis practices are associated with the best patient outcomes, with the primary goal of improving patient longevity, quality of life, and other outcomes. With more than 80 peer-reviewed publications in print or in press, the DOPPS continues to provide numerous important findings that are relevant for patients and practicing clinicians alike. The DOPPS is supported by research grants from Amgen and Kirin Pharma, without restrictions on publications.
    For more information visit DOPPS site at www.dopps.org

  • The Scientific Registry of Transplant Recipients (SRTR): The Scientific Registry of Transplant Recipients contract was awarded to Arbor Research by the Health Resources and Services Administration in October 2000 following a national competition.

    The SRTR is mandated to perform the analyses that measure the efficiency and fairness of transplantation. The research agenda of the SRTR includes evaluation of the process by which patients gain access to transplant waiting lists, analysis of patient outcomes while on a waiting list, evaluation of the allocation of the limited organs, and evaluation of patient outcomes following transplantation. In addition, the SRTR is charged with assessing and monitoring the quality of the data collected by the OPTN and assessing OPO performance.

    The research findings of the SRTR are available to patients, their families, clinicians and the transplant community, the public, and the government. General transplant-related information as well as OPO- (Organ Procurement Organization) and transplant center-specific statistics can be found at www.ustransplant.org, the official web site of the SRTR.

  • Health Policy and Practice Projects (HP3)

    For over 20 years, members of the Arbor Research Collaborative for Health team have been supporting CMS (Centers for Medicare and Medicaid Services) through analytical work and clinical input to help health professionals, patients, and stakeholders in our healthcare system close quality gaps by turning promising new ideas into action. The assurance of high-quality medical care that is personalized, prevention-oriented, and patient-centered relies on evidence about the benefits and costs for each particular patient.

    Large gaps still exist between the CMS goals of high-quality care for every patient every time, and what our healthcare system delivers. Arbor Research evolved in response to the needs identified by CMS and the community for initiatives such as quality measures of performance and outcomes, value-based purchasing, and quality incentive payment plans. These initiatives fall under the Health Policy and Practice Projects (HP3), whose mission is to produce healthcare research that can inform policy and reduce gaps in quality care. Our current contracts with CMS, for which Arbor Research is the prime contractor, are listed below.

Role of the SRTR


SRTR Information Flow




Arbor Research
Collaborative for Health


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USA
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